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A data network for health e-Research

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dc.contributor.authorTaylor, Kerry
dc.contributor.authorO'Keefe, Christine M.
dc.contributor.authorColton, John
dc.contributor.authorBaxter, Rohan
dc.contributor.authorSparks, Ross
dc.contributor.authorCameron, Mark
dc.contributor.authorLefort, Laurent
dc.contributor.authorSrinivasan, Uma
dc.contributor.editorStormer, Henrik
dc.contributor.editorMeier, Andreas
dc.contributor.editorSchumacher, Michael
dc.date.accessioned2019-07-11T11:28:54Z
dc.date.available2019-07-11T11:28:54Z
dc.date.issued2006
dc.description.abstractSharing health data for research purposes across data custodian boundaries poses technical, organisational and ethical challenges. We describe a service oriented architecture for a proposed Health Research Data Network (HRDN). The HRDN architecture supports services to manage data access and use by researchers in accordance with individual data custodian policies. The capabilities of the HRDN architecture are described using a layered service model. The four abstract layers from lowest level to the highest level are 1) Preparing, 2) Storing, 3) Sharing and 4) Using. Two additional groups of services are interfaced with the services in each of the four layers. They are 1) Describing, with services for collecting and managing metadata, and 2) Protecting, with services for ensuring confidentiality and privacy protection, as well as services and tools implementing information security functions. In addition to these HRDN service groups, client-side applications are used by data custodians, service providers and researchers. Following a reference implementation of most services and the Researcher's Workbench, a commercial version of the software has been developed and is being trialled.en
dc.identifier.isbn978-3-88579-185-0
dc.identifier.pissn1617-5468
dc.identifier.urihttps://dl.gi.de/handle/20.500.12116/23995
dc.language.isoen
dc.publisherGesellschaft für Informatik e.V.
dc.relation.ispartofEuropean Conference on eHealth 2006
dc.relation.ispartofseriesLecture Notes in Informatics (LNI) - Proceedings, Volume P-91
dc.titleA data network for health e-Researchen
dc.typeText/Conference Paper
gi.citation.endPage226
gi.citation.publisherPlaceBonn
gi.citation.startPage215
gi.conference.dateOctober 12-13, 2006
gi.conference.locationFribourg, Switzerland
gi.conference.sessiontitleRegular Research Papers

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P091 - European Conference on eHealth 2006