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Auflistung nach Schlagwort "data donation"

1 - 3 von 3
  • Workshopbeitrag
    Empowering Citizen Science Through Digital Technologies: New Participatory Approaches to Data Collection, Sharing, and Analysis
    (Mensch und Computer 2022 - Workshopband, 2022) Pumplun, Luisa; Wagner, Amina; Störzinger, Tobias; Fecho, Mariska; Buxmann, Peter; Misselhorn, Catrin
    This workshop revolves around citizen science as an approach that allows people to collect data, share it with scientists, and actively participate in its analysis via modern digital technologies. In recent decades, Internet users have generated ever increasing amounts of personal data, e.g., through the use of mobile devices, wearables, or social networks. At the latest since the outbreak of the Covid 19 pandemic, it is clear that citizens are willing to donate this data for a good cause and in particular to promote science. Beyond donating data, citizens are increasingly involved in other phases of the research process, such as data analysis. This draws citizens and scientists closer together and blurs boundaries between the otherwise separated parties. Beyond the promise of larger data sets and more effective data analysis, however, citizen science has its downsides, especially when it comes to broad citizen participation through digital technologies. For example, key issues such as ensuring data privacy or quality are still unresolved. Therefore, the workshop will address the advantages and disadvantages of digitally enabled citizen science, the use of advanced digital technologies to engage people in research, and specifically data donation, which has been of particular interest in research and practice recently. We invite researchers to submit contributions in the area of digitally enabled citizen science to further develop this branch of research with respect to ethical, legal, and technical concerns, among others. We will also host a panel discussion with several experts from different disciplines on the special interest topic data donation to share ideas and discuss how this type of citizen science can be realized. We intend to use the results of this workshop as a starting point for further discussion, research, and steps towards participatory science.
  • Konferenzbeitrag
    Foregrounding Values through Public Participation: Eliciting Values of Citizens in the Context of Mobility Data Donation
    (Mensch und Computer 2023 - Tagungsband, 2023) Sörries, Peter; Franzen, Daniel; Sperl, Markus; Müller-Birn, Claudia
    Citizen science (CS) projects are conducted with interested volunteers and have already shown promise for large-scale scientific research. However, CS tends to cultivate the sharing of large amounts of data. Towards this, our research aims to understand better citizens’ potential privacy concerns in such participation formats. We, therefore, investigate how meaningful public participation can be facilitated to foreground citizens’ values regarding mobility data donation in CS. In this regard, we developed a two-step method: (1) a workshop concept for participatory value elicitation and (2) an analysis procedure to examine the empirical data collected systematically. Our findings based on three workshops provide new directions for improving data donation practices in CS.
  • Workshopbeitrag
    Taking a Value Perspective on Medical Data Donation Through Participatory Workshops
    (Mensch und Computer 2022 - Workshopband, 2022) Müller-Birn, Claudia; Leimstädtner, David; Sörries, Peter
    Clinical patient data is a valuable resource for data-driven medical research. However, discussions around personal data privacy highlight the urgency of designing user interfaces that communicate the possibilities and limitations of the data security used when sharing personal health data. To better understand patients’ values regarding medical data sharing, we developed a methodical approach for value-centered participatory workshops. This approach is inspired by two strains, value-sensitive design and reflective design, to reveal values related to a data donation process in the medical field. The data collected in the workshop (the first of three) will be used to derive design recommendations to improve data donation processes.