Unfolding Values through Systematic Guidance: Conducting a Value-Centered Participatory Workshop for a Patient-Oriented Data Donation
| dc.contributor.author | Leimstädtner, David | |
| dc.contributor.author | Sörries, Peter | |
| dc.contributor.author | Müller-Birn, Claudia | |
| dc.contributor.editor | Mühlhäuser, Max | |
| dc.contributor.editor | Reuter, Christian | |
| dc.contributor.editor | Pfleging, Bastian | |
| dc.contributor.editor | Kosch, Thomas | |
| dc.contributor.editor | Matviienko, Andrii | |
| dc.contributor.editor | Gerling, Kathrin|Mayer, Sven | |
| dc.contributor.editor | Heuten, Wilko | |
| dc.contributor.editor | Döring, Tanja | |
| dc.contributor.editor | Müller, Florian | |
| dc.contributor.editor | Schmitz, Martin | |
| dc.date.accessioned | 2022-08-31T09:43:03Z | |
| dc.date.available | 2022-08-31T09:43:03Z | |
| dc.date.issued | 2022 | |
| dc.description.abstract | Routinely collected clinical patient data posits a valuable resource for data-driven medical innovation. Such secondary data use for medical research purposes is dependent on the patient’s consent. To gain an understanding of the patients’ values and needs regarding medical data donations, we developed a participatory workshop method, integrating approaches from value-sensitive and reflective design to explore patients’ values and translate them into hypothetical, ideal design solutions. The data gathered in the workshop are used to derive practicable design requirements for patient-oriented data donation technologies. In this paper, we introduce the workshop process and evaluate its application. | en |
| dc.description.uri | https://dl.acm.org/doi/10.1145/3543758.3547560 | en |
| dc.identifier.doi | 10.1145/3543758.3547560 | |
| dc.identifier.uri | https://dl.gi.de/handle/20.500.12116/39257 | |
| dc.language.iso | en | |
| dc.publisher | ACM | |
| dc.relation.ispartof | Mensch und Computer 2022 - Tagungsband | |
| dc.relation.ispartofseries | Mensch und Computer | |
| dc.subject | Value-sensitive Design | |
| dc.subject | Reflective Design | |
| dc.subject | Participatory Workshop | |
| dc.subject | Values | |
| dc.subject | Method | |
| dc.subject | Data Donation | |
| dc.subject | Medical Domain | |
| dc.title | Unfolding Values through Systematic Guidance: Conducting a Value-Centered Participatory Workshop for a Patient-Oriented Data Donation | en |
| dc.type | Text/Conference Paper | |
| gi.citation.endPage | 474 | |
| gi.citation.publisherPlace | New York | |
| gi.citation.startPage | 469 | |
| gi.conference.date | 4.-7. September 2022 | |
| gi.conference.location | Darmstadt | |
| gi.conference.sessiontitle | MCI-POSTER | |
| gi.document.quality | digidoc |