Konferenzbeitrag
Unfolding Values through Systematic Guidance: Conducting a Value-Centered Participatory Workshop for a Patient-Oriented Data Donation
Vorschaubild nicht verfügbar
Volltext URI
Dokumententyp
Text/Conference Paper
Zusatzinformation
Datum
2022
Autor:innen
Zeitschriftentitel
ISSN der Zeitschrift
Bandtitel
Verlag
ACM
Zusammenfassung
Routinely collected clinical patient data posits a valuable resource for data-driven medical innovation. Such secondary data use for medical research purposes is dependent on the patient’s consent. To gain an understanding of the patients’ values and needs regarding medical data donations, we developed a participatory workshop method, integrating approaches from value-sensitive and reflective design to explore patients’ values and translate them into hypothetical, ideal design solutions. The data gathered in the workshop are used to derive practicable design requirements for patient-oriented data donation technologies. In this paper, we introduce the workshop process and evaluate its application.